Those of you that have followed this blog since it’s beginnings will know that it started because two out of my three children suffer from GORD. As in gastro oesophageal reflux disease. I was mental at the time of the MMM birth, with little to no sleep under my belt and every emotion under the sun from the frustration of not being able to fix things.
The blog gave me something to focus on. Something I could achieve from my home without offending anyone with my screaming spewing kids. It was a place I was forced to be mildly sane when everything else suggested I was nuts.
Phew. Thank you blog.
So What Has Been Happening Lately
I haven’t been writing much about the old Oh My GORD in the last few months and you may have started to think things have improved, and yes in many aspects it has. We still have our moments and nights of little sleep but all in all …compared to 1 year ago we are managing a lot better.
The medication Lil D is on finally works. He occasionally has breakthrough pain but that is normally if he has been into some chocolate. It is all a different story if we forget to give him his meds though. Having a 14kg toddler rolling around in pain and begging you to hold him upright all night sucks it. That then makes any hint of my aching ovaries shrivel and die. The chances of having another reflux child once you have had two is hideous.
Lil D has also developed what appears to be asthma. I say this through clinched teeth as I am in part denial. The statistics show however that many reflux kids end up suffering from asthma too sadly. However, being the No Fricken Way Mother that I am, we are booking back into swimming lessons and blowing up packets of balloons in an attempt to keep his lungs nice and strong.
Miss M is also a lot better. She had a repeat fundoplication earlier in the year and is thriving again. Her weight had dropped down to under 20kgs prior to the op and the dark circles under her eyes seem to be swallowing my beautiful little girl up. 4 months post op and she is heading up to 24kgs and is a really happy healthy little girl. She can bounce on the trampoline. Something all little girls should be able to do full stop! And she can eat as much as me. I rarely even get a call from her school telling me she is unwell. Previous to the op it was daily. Post operatively we just need to be careful she chews her food plenty and doesn’t eat anything that may get stuck in the fundoplication. We have had some issues with her vision unfortunately which the optometrist feels may of been caused from her failure to thrive, however that is nothing that a trendy little pair of glasses hasn’t fixed. Onwards and upwards so far for this young lady.
So, there you go. A little update on the Oh My GORD. It is funny how eventually you get so used something as frustrating as reflux and you learn to be happy around it and never going anywhere without medication and vomit bags.
If I can say one thing to fellow reflux parents right now though, it is this .. HANG IN THERE. Find a good paediatrician you can talk to and that hears you and do what you are doing. You are a wonderful parent stuck in a shit situation and one day soon the game changes and while the reflux may not leave it becomes a bit easier to manage.